Here is a topic I just posted on an RSD support website. I am infuriated. THIS DISEASE IS NOT A JOKE. The longer one waits to get care, the more his/her disease will progress. For those of you who believe in things like heaven and hell... the pain can be equated to burning in the fires of hell. Now, imagine that pain all over your body. Not only is this disease painful, it is crippling... and it is PROGRESSIVE.
"I've never had to deal with anyone denying my disorder, especially in a way that has prevented me from getting medical care. I've been really lucky. Most doctors knew something was wrong but diagnosed me with benign conditions because they didn't know any better (for the most part). In my personal life, people don't understand how bad it really is, but they know something is gravely wrong. I just read and replied to a post in "rant and rave" where a young woman is being denied medical care in a hospital. I love how most medical professionals never ever mention mental health care, stress management, coping skills, etc... when you actually need them, but are so quick to diagnose you with factitious disorder, malingering, munchausen's, etc... I am a psych and soc girl (in fact, I will be a therapist in 2 years time), and the difference between mental disorders and REAL PAIN are painfully obvious. For such brilliant people, these displays are pathetic.
I am saddened by the lack of empathy, compassion, social skills, and knowledge that those who are supposed to HELP us possess. These are supposed to be some of the most brilliant minds in the country...
You can bet I will be doing something about this in my lifetime. I will make waves...
P.S. Dr. Richman at HSS in NYC is the exact opposite. He is absolutely amazing for anyone who cannot seem to find a doctor who will take their pain seriously."
"I've never had to deal with anyone denying my disorder, especially in a way that has prevented me from getting medical care. I've been really lucky. Most doctors knew something was wrong but diagnosed me with benign conditions because they didn't know any better (for the most part). In my personal life, people don't understand how bad it really is, but they know something is gravely wrong. I just read and replied to a post in "rant and rave" where a young woman is being denied medical care in a hospital. I love how most medical professionals never ever mention mental health care, stress management, coping skills, etc... when you actually need them, but are so quick to diagnose you with factitious disorder, malingering, munchausen's, etc... I am a psych and soc girl (in fact, I will be a therapist in 2 years time), and the difference between mental disorders and REAL PAIN are painfully obvious. For such brilliant people, these displays are pathetic.
I am saddened by the lack of empathy, compassion, social skills, and knowledge that those who are supposed to HELP us possess. These are supposed to be some of the most brilliant minds in the country...
You can bet I will be doing something about this in my lifetime. I will make waves...
P.S. Dr. Richman at HSS in NYC is the exact opposite. He is absolutely amazing for anyone who cannot seem to find a doctor who will take their pain seriously."
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