First I would like to say, thank you tammy and swimfree for giving me your opinions and personal experiences with God. I love hearing from others, and I really appreciate you taking the time out to educate me and put a different spin on things. Your words weigh heavily on me in my search for a relationship with God. The more I know, the better :-)
More updates: I have been given a stronger narcotic to help manage my pain. I am on a very low dose vicodin right now and it is doing nothing more than take a very little bit of the edge off. It is still too difficult for me to stand for more than a few minutes. Also, I am going for a trial SCS procedure on June 9th, and if it can a good portion of my pain away, I will have the more permanent device implanted shortly after. I hope it works! I start graduate school in September, and I need some normalcy in my life to deal with such a demanding mental and physical two years. Keep your fingers crossed!
I am continuing to explore a personal relationship with God. Although it is not easy for me to go from not believing to believing and all that comes with it, I am trying my best daily. I am praying, meditating, reading literature on spirituality, and trying to recognize God in what surrounds me every day.
If anyone has a free moment in their day, I would appreciate it more than words can say if you would visualize me healthy. I need all the positive energy I can get, and I would be honored to receive it from those who keep up with my life by reading my blog :-) Thank you, thank you, and thank you some more in advance!
3 comments:
Hey there,
I came across your blog via Google and just wanted to tell you that it has been a big help to hear about someone else's battle with RSD. I'm currently in a rehab program at Children's Hospital of Philadelphia and I'm trying my best to fight through it. I hope you win your battles with the disease as well and stay as optimistic as you've been through out the blog. Also: good luck on your search for god.
-Jen
Hey Maria (its so nice to know your real name)
I just wanted to say hi and that I'm glad you were talking to Dave. I dont know if I ever said when you were around on the forum, but I have rsd too, but only in one foot. Today everytime I had to talk myself though my pain I thought of you and sent you some good thoughts too, I hope they help!
Talk to you soon
Felicia (aka Alessea)
I want to let you know that in one of your other posts you made a comment about not being of any real use right now....Sweetie, Always remember, you ARE useful in soooo many ways to soooo many people that you can't even begin to count. You will discover more of that once your journey in discovering God gets clearer and clearer with you.
Secondly, I wanted to let you know that I had the SCS trial done and was very impressed with it. Not only do I have RSD full body, but I also handle Fibromyalgia, Osteoporosis, and the onset of MS, all of which are painful afflictions. I was able to get about 30-35% relief with the SCS and am having it implanted on June 2nd. I am so excited about it and really looking forward to it.
I sincerely wish you the best of luck with yours as well!!
There are some things to know that they don't tell you when you have it done, that I would like to share with you real quick. You are going to laugh, but, when you go to the bathroom for #1 or #2, just turn the SCS off....when you clean yourself and twist to do so you will get a little extra buzz, and with #2, when you feel the urge to help push things along, you will get an extra buzz that will pretty much stop things from happening. =) So it's safest to just turn it off when going to the bathroom period...hahahaha.
Also, when you laugh, cough, sneeze, or clear your throat you will get that extra buzz, so just be aware. It is also really good for your posture when sitting at the table too.
It won't be so bad with the permanent one though because it will be implanted and fused to the nerves better than the trial.
~Much Luck & Best Wishes~
In His Glory,
Marla
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