As for a pain/disease progression update, the pain in my hands/arms has gone from intermittent to a constant source of discomfort in the last two-ish weeks. Typing has become more difficult (the more I use them the more they hurt), and the little yoga I do has turned into even littl-er yoga I do hehe...boo hoo... I guess this disease really is progressive. Ouch (in more ways than one)!
I was in the hospital today for pre-admission testing, and the blood pressure cuff AND blood drawing created great RSD discomfort, which is probably why my hands hurt more than usual tonight. Hopefully, a good night's sleep and some positive thinking will make tomorrow a better day.
I am a 28 year old, high raw vegan, licensed social worker (MSW, LSW) healing from a "progressive" and "incurable" neurological disease, Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome (RSD/CRPS). Join me as I reflect, learn, grow, HEAL, and conquer. You can e-mail me at mariamooney@comcast.net, follow me on Twitter at http://twitter.com/happyhealing44, friend me on facebook: facebook.com/prefontaine44, or ask me anonymous questions at http://www.formspring.me/HappyHealing44.
3 comments:
Hi: My first and worst RSD part are my hands/arms. Try holding your arms/hands up over your head level and that will relieve some of the pressure. I hope it works for you.
I have to do that all the time. It looks weird (if I happen to be at the doctor's or something), but I have learned to not be embarrassed. When they throb that bad, I don't care where I am at, I stick them straight in the air for a few seconds and that temporarily drains the blood and drops the pressure.
My daughter got married last month and right in the middle of the ceremony my hands hurt so bad, up they went. It was a small wedding and everyone understood, but if I don't, it starts a big flare up for days... Give it a try; you have nothing to lose and you know it's harmless.
Low pain days for all!!!
TheMatrix777
I cannot begin to imagine how strong you are. Whenever I get very near the end of being able to cope (with whatever), my Auntie reminds me that we are never given more than what we can deal with.
This reminds me that regardless of how I feel, I know deep down I can handle it and I calm down and relax and things get better.
Sometimes I wish I was a weak person so I didn't have to just get on with this.
Having said all that, I still wish I could give you a proper break from all the pain.
Felicia
Hang in there kid, remember, this disease is like a wild animal; that being said, it is more afraid of you, than you should be of it. Remain in control, never let it see your fear, and in due time you will command it.
Post a Comment