Half of the response I fancy was bestowed upon me yesterday. I pulled out my laundry list of supplements, and then, I held my breath and asked, "Is there anything I am missing?" With RSD, I am always fearful that there aren't any more options left for me to take a crack at. He handed me a script for an anti-inflammatory cream to apply four times a day, and also told me the positive effects that over the counter Capsaicin has on nerve pain. He warned, "You may get worse before you get better. Just give it a few days." More pain? Okay, fine by me. What do I care at this point?!
Minutes before Shorter's obedience class, I franticly purchased Capsaicin fantasizing that it would relieve my pain for the next hour. Silly me, I picked the roll on applicator versus the cream and had to squeeze the liquid out to get it to cover both lower legs.. my first, only, and LARGEST mistake. I'm not quite sure if it's the RSD, the fact that I squeezed the entire bottle of liquid out, the capsaicin itself, or all three combined, but it felt and still feels 12 hours later as if I am burning in the fires of hell... and the fire is growing! I couldn't even sleep! In a way, I find it funny. Is that wrong?! Silly life.
Let's look at the positives here. Only a few more days of this torture before it may have some effect on my nerve pain, AND this is a great way to get me used to what I will probably feel like during graduate school. This may even be worse, so when I flare, I can always think, "Well, at least this isn't as bad as my RSD+Capsaicin disaster!!!!!"
Today, I am probably spending the day with the boy who gave me that ring ;-)... and Capsaicin!
3 comments:
Aiieee, hon! I'd heard this was 'helpful', too... now I'm not at ALL sure I even want to try! Well, at least I'll know not to use the whole thing! ;)
Your last post about the dream supplements was very interesting; don't underestimate the power of dreams... your body is wise! I'll take those, too. In fact, I've been thinking a lot about how anything to do with nerves calls for certain fats to be increased in the diet - anything known to increase the myelin covering those poor nerves has to be good... also, have been reading how B12 is VERY important to nerve health. Some will tell you vegans need a B12 supplement as the only dietary source is from animal products (including dairy), I have also learnt this isn't true. HOWEVER, I do think for RSD/CRPSers, we need all the extra help we can get.
So, I'm off to my local Vitamin Shop (interestingly the same name with different spelling!) to invest in some ALA and L-carnitine and will have lunch after at our new all raw foods cafe, appropriately entitled Cafe Bliss. I'll raise a toast to you, my dear, and hope your fire has gone out - or at least has dwindled to a more manageable glow!
Oh, and I've been very interested in comparing notes on medications. Not sure how you feel about publishing this info. If you'd rather not, but don't mind sharing with me, I'd be thrilled to hear from you (who knows, maybe your meds are better than mine!).
lisa.growth@gmail.com
I don't have RSD, but Ehlers_danlos, and have tried capsaicin and had the EXACT SAME EXPERIENCE... ugh, that stuff is no good. I'll stick to icyhot thank you.
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