I just returned home from an ungodly early pain management appointment, which Pat accompanied me to :-) It's so wonderful and humbling to always have the support of my loved ones. After discussion about my disdain for morphine and the extreme agitation it caused an otherwise pleasant girl, he decided to put me on/start me off at a low dose of the fentanyl patch. This way, my chances for side effects not worth the pain relief will be lowered...not that the opana relieved my pain at all. Substituting the opana for the patch still leaves me with my norco to take, but the goal is to eventually only use the norco for "breakthrough pain." I have no idea what breakthrough pain feels like because I am always in a steady stream of uncontrollable pain, so it will an incredible day when I just have breakthrough pain to contend with.
Still waiting on Project Enbrel.
One of the many characteristics I love about my pain management facility is that they are near obsessed with insisting psychological help should be a large part of a pain management regime based upon the high rates of reactive depression, anxiety, etc... We always seem to chit chat about this fact since they know I am in graduate school studying to become a mental health professional to help those cope with chronic pain and illness. Too bad they don't hire therapists in the facility itself. That would be key... one stop shopping.
Today, I am spending some time with Pat and the baby, and tomorrow, I am heading up to the city to visit my best girlfriend since high school and go to Pure Food and Wine to eat lunch! I can't wait!!!! Yay raw vegan restaurants!
I am having an awesome snack of freshly cut, organic watermelon and organic coconut milk to drink.
6 comments:
Have fun! Pleas take some yummy food pics for us to drool over! :)
Have you had lumbar nerve blocks yet? I'm sure you have since they are the most standard treatments for RSD. And I can't believe your doctors performed surgery on you since it is known to worsen and even be the initial cause of RSD.
My dream is it open a pain clinic with open minded professionals working together and trying new things. If I make it back to grad school, I want to be a nutritionist when I grow up. Then I would higher a pain specialist, chiropractor, physical therapist, massage therapist, pain psychologist, acupuncturist, and a homeopath. There's probably someone I'm leaving out. But I have extended fantasies about people from all if these areas discussing one patient from different perspectives. If I ever sell my book and make enough scratch, this is what I'm going to do. Fingers crossed.
I've already had lots of surgery...
I had the same tarsal tunnel release, peroneal nerve decompression, carpal tunnel release, and Thoracic Outlet decompression on both sides.
lots of fun!
Oh sounds like a fun-filled weekend! To answer your question, my mom has even MORE of a fashion-sense than I do! She taught me everything I know, which can be a pain because now she has such high expectations!
Have a great time this weekend, take lots of pics! =)
You said: Geeze, we have been through a lot, huh? Was you pain worse when you were pregnant or better? I see you are a mother, and even though I am not a baby person, I always wonder, "what if I do want one some day and I still have this disease?"
While I was was pregnant, I either felt better than normal, or much much worse. But I would say that overall I felt better.
OOOH! Lucky girl you! Pure Food and Wine... jealous! Have something yummy for me... ok, well, you've already gone as I write this but whatever... I hope what you had was fab!
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