Running off of my "autoimmune high," I spent yesterday at my fiance's house with my pup, who I never leave behind :-) The little bugger is my shadow and even a security blanket of sorts for me with this disease, which makes my horizontal days on my basement couch much easier to take when I use him as a pillow substitute. He's really comfy!
My fiance and I made our ways over to the movie theater to see My Life in Ruins, and we both really enjoyed the flick's romantic comedy set in Greece's majestic ruins and seasides. I haven't been to the movies in a REALLY long time because I don't really enjoy the movies that much... well, that is a half truth and the excuse I tell most people. The real truth is that it is painful for me to sit in those seats for two hours straight, and I would probably enjoy good movies more often if I didn't have this illness. Therefore, I only sit through movies I deem "worth it."
Moral of this story: Absolutely any and every small aspects of your lives should not be taken for granted and should be enjoyed with overwhelming gratitude to their fullest extents. I learned this too late, but live by it now, enjoying what I do have and can do as if it will be the last day I ever experience it.
I am a 28 year old, high raw vegan, licensed social worker (MSW, LSW) healing from a "progressive" and "incurable" neurological disease, Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome (RSD/CRPS). Join me as I reflect, learn, grow, HEAL, and conquer. You can e-mail me at mariamooney@comcast.net, follow me on Twitter at http://twitter.com/happyhealing44, friend me on facebook: facebook.com/prefontaine44, or ask me anonymous questions at http://www.formspring.me/HappyHealing44.
5 comments:
Just what I was expressing to my pain psychologist at the rehab clinic today, Maria! Very cool about making your days mean something...
Glad you got to enjoy a movie; I LOOOVE movies! In fact, my son just got a job at our nearby theatre (a massive "SiverCity" one) and I'm SO excited because a) he's got a job he wanted b) he gets free passes to movies! and c) I pay the little extra to go there because their seats are huge and comfy - really comfy! So I can actually enjoy a movie!
Oh, I was thinking of seeing that movie and now I will for sure. I bet the scenery on the 'big screen' made it scrumptious to watch.
I'm hoping I can train my new (to me; she;s 3) kitty to go places with me as I NEVER want to leave her behind! Right now I'm out of town and my bestest friend is snuggling her for me - he's over so often she thinks he's just another part of the family, which he is! But still, I sooo miss her snuggling me and 'forcing' me to rest on the couch while she snoozes on my chest. Ahhh, furry love. I'm SO in love!!!
Hey Tough Cookie!
Well, if you read the novel I wrote back to you on my blog just now, then you know I can completely relate to the challenges involved with sitting in a movie theater seat!! :)
I'm really glad you got to see a movie and that you enjoyed it. I totally get the wanting a movie to be "worth it" when it means sitting in movie theater seats for the length of time a movie takes.
Your "moral of the story" is spot-on. I believe one of the blessings (yes, blessings) of chronic illness is that it gives us appreciation for things we might otherwise have taken for granted. It gives us a perspective that we couldn't get if we were healthy. I have learned that negatives can be turned into positives. Chronic illness has helped me learn that.
Jeanne
Jeanne, I just replied back on your blog with a novel of my own! Thank you so much for stopping by!
Tough Cookie,
I'm infamous for my novels. :)
Jeanne
Tough Cookie,
OK. I'm going to break one of my cardinal rules because I don't think you'll mind (or I wouldn't do it).
Normally I don't ever post links in blog comments because I don't want to be spammy. In this case, I'm sure you will like this link.
This is the blog of one of my twitter friends who has RSD. She lives in Australia and she is in her 20s like you.
http://rellacafa.com/
Check it out...
Jeanne
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