I haven't updated since I got the news about a week ago... My bloodwork didn't change much on that low dose of prednisone, which only means that I cannot go on Enbrel or Fosamax right now because of my low Lupus compliments. Both of these medications can exacerbate any sort of atypical Lupus, Lupus, or other connective tissue diseases/illnesses on the Lupus spectrum, and because my Lupus compliments did not change, I can't rule out any of those illnesses in combination with my RSD. I started taking Plaquenil, which is an immune suppressant used when medications like Enbrel cannot be used for reasons like mine. The only downside is it takes near two months to start working, so I will get my bloodwork done again and we will go from there. I might just wind up going on the medications in two months. This is all cautionary and doesn't mean I 100% have a Lupus like disorder (my Lupus factor is negative BUT my Lupus compliments are low, which occurs in people who do have the illness) since I have no other signs/symptoms, but these precautions need to be taken just in case... This could all just be an immune response from the RSD. We shall see.
Oh, and the reason why I haven't updated is because of how crappy this patch makes me feel as my body gets used to the higher dose, 25 mcg/h. It takes me about three patch cycles to want to get up off the couch. Add that with stinky RSD style PMS, and I am down for the count.
5 comments:
Hi Maria,
I am sorry that you didn't get the results from your blood work that you were hoping for. I am inspired by your continued dedication to figuring things out and I learn so much from all the research/ testing that you do.
Thank you for the update. I am thinking about you.
Thanks, Zoey! It's not too big of a deal, just taking some precautions, which is the smart thing to do in a situation like this. I love myself enough to keep on moving forward :-)
Maria, I have missed you! I have been looking out for an update and I am happy to hear from you. I'm sorry that your results were not what you had hoped for. You are such a strong woman and a real inspiration. I really admire you!
Hey Maria, I'm so sorry to read that you did not get positive results from the tests! I went through a bunch of extra testing last year because a blood test showed a high rheumatoid factor and they thought I had rheumatoid arthritis. A million tests later I was cleared and it was assumed that my symptoms were just RSD. I hope you get the all clear too, no one needs any extra problems!
-Caf xx
Hi love, sorry to hear your news. Do hope all goes well and you feel better soon. Take care! (:
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