I just wanted to share this quick e-mail sent to a beautiful, beautiful soul in response to a specific statement. Perhaps, it can touch more than just one (excuse the typos and messy language... I'm just copying and pasting from my e-mail):
I forgot to comment on your statement "I look at you in these pictures and just wonder how you've made it through...you are a tough cookie!" First, thank you! Second, I am making it through... it's a decision I make each day to keep on going, but it is ALWAYS a struggle. ALWAYS. A lot of people who read my blog have thought I am so tough and never have bad days, but that isn't true at all.... well, I have bad moments. I try to never let this disease ruin an entire day. I wasted too long letting it do that for awhile. I just make a concious effort to enjoy each day and to try to live my best life despite what is happening to me. It really is a decision that I make everyday... I wake up and renew it each morning, and I enjoy the wonderful parts of my life taking the time to focus on them more. It gets easier and easier with time. This is my fifth year being "sick" so it has only gotten easier to cope and to accept, but that doesn't mean I like this at all. I obviously hate it at this point. I've learned all those incredible life lessons, and now I want my health back. I keep hoping that someday it will happen.
I hope this can help someone else out there who is feeling down in the dumps like it has been able to uplift my lovely friend.
Happy Healing!!!!!!!
5 comments:
Good reminder, Maria.
Learning to live with such a devastating diagnosis such as CRPS/RSD isn't something one just accepts overnight. It's a process. I've found myself feeling in control, more positive and accepting, only to find myself down in the dumps, scared and sad a few months later.
It's not a static disease; we have such ups and downs, it's only reasonable our moods will be at risk, too. But we keep on, working at staying positive, seeking help in many forms - from counselling to complementary health practices.
I expect better days again. I honestly wasn't expecting these harder days again, but I am able to see how over the last 3.5 years, it has been a roller coaster. Now, I must learn to hang on and not scream at every unexpected turn, one might say!
Thanks for sharing as always. :)
Thank you, Lisa! The nature of the beast is that it NEVER stays the same. That is good when you are in a pain flare, but bad when you are feeling great like I was for a few weeks toward the end of the summer. You just never know when it is going to turn. Saying my prayers for you, dear friend. I'm pretty sure the weather made me turn. Once it goes below 65 degrees, I am in trouble.
Finding the positive in the everyday and maintaining a good support group is critical!!!! I will keep you in my thoughts!
Thanks, pursuing balance! I appreciate the love!
Its a roller coaster indeed. There are days when I have no idea how my husband is getting through the day. Its been a rough road and I know he tries to hide the hard times from me.
It cant be easy on you at all. Especially with a young child to look after. My heart goes out to you. After reading many of your postings I see such a strong person, its uplifting :)
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