Hello, healers! I am featured in How to Cope with Pain's July Pain Blog Carnival. Take a look!
I have been dealing with some crazy insomnia from the ketamine infusion and opiate withdrawals, even while taking trazodone, the best sleep inducing pill on the planet for sleep disorders. When I get back onto a normal sleep schedule and my brain fog lifts, I will be finishing up a post directed toward spouses/partners of those with chronic illnesses (upon request). Check back for that soon!
As for my RSD/CRPS, I am still off all opiates with a great reduction in pain and starting back on a gentle yoga and strengthening routine. I have some questionable pain and discomfort the day after some strengthening, but it doesn't last. Also, I picked up a script today for some formal PT while I am going through my ketamine boosters. Since range of motion and serious muscle atrophy aren't issues for me (thanks to a strong runner's will, some opiates, and a high pain tolerance over the years), I would like to become very strong again, just as I was in my peak running days. We'll see if this is possible, but I believe it is, especially if done while still receiving ketamine to avoid flares and set backs, etc.
My first set of boosters is in one week, and I am actually looking forward to them so I can continue on the path of healing. Also, it will be nice to check in with Dr. Schwartzmann again in person. Remember, I live in NJ, and all of this is done in Philly, PA.
My appetite has been OUT OF CONTROL, so I am refueling with some healing, plant-based, nutrient dense foods and juices.
THE END!
Happy Healing!
7 comments:
I am so happy to hear that you are healing and things are coming along swimmingly. Looking forward to your post on spouses/partners of people with chronic illness.
Hi, ellecubed! Thank you :-) I will get that post up ASAP. xoxo
I happy everything is going so well! I hope you get some sleep soon! I've been there (on prednisone) and I know how it feels. Just try to relax, I'm sure you'll be sleeping like sleeping beauty again soon!
So happy to hear you are doing better and healing! I will keep you in my thoughts :)
Hi maria,
I am wondering how you are coping in regaining your confidence in your body with your healing? I have found my RSD seems to have such a mind of its own and i lost trust in my body and how it resopnds to things as compared to how i used to feel (invincible!). The thought of going for a run terrifies me as i would worry about it the RSD starting all over again (since thats how i first got my RSD). I know it is all in the mind and worrying gets you nowhere but its easier said than done! Any tips on how you are managing this?
Thank you!
Yes, I can definitely address that question. I'm sure many people have the same question.
I am glad to hear that things are going so well. I haven't been posting as much but I am still reading!
If you decide to build your strength again please go slow. This is something that I have been struggling with constantly because I was an avid exerciser before RSD and it is VERY hard for me to not push myself.
Also eat lots of food if you are hungry, your body needs the fuel for healing!
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