Thursday, March 29, 2012
Guest Post: Ways To Get Involved and Learn About RSD/CRPS
Hi, healers! Below is a lovely guest post written by Carolyn from the website BrainTrack.com. Enjoy!
Ways To Get Involved and Learn About RSD/CRPS
Have you or one of your family members, friends or your partner recently been diagnosed with Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome (RSD/CRPS)? Thanks to the web, access to medical research, both in the U.S. and abroad, has helped sufferers and their loved ones learn more about this devastating condition. If you are looking for places to go to learn about RSD or ways to get involved, here are a few places to check out:
1. Of course, the first thing you need to do is to talk to your doctor and learn everything you can from then. Ask them what resources they recommend you look into.
2. The first thing you need to do is understand what’s going on. Once you have Tgotten the advice of your Doctur, the Reflex Sympathetic Dystrophy Syndrome Association website is a great place to startgo. There are videos, educational resources, national support group listings and even membership options. Also visit, American RSDHope as well. They, too, are an excellent resource for questions, information, treatment options, articles and even awareness clothing. They’re a pretty organized group and a dedicated non-profit for the support and education of people with RSD and their friends and family.
3. The second step is to join a support group. It may seem like just another thing to add to your already full plate, but it will be the kind of support that can be a lifesaver. Whether you are the one with RSD or you are closely connected with someone with RSD, both of you need the support of others in your similar situation.
4. It’s time to make a plan of attack. If you know you have RSD, then you have been around the medical scene at least a little. Now that you know you have a lifelong condition, it’s time to wrap your mind around how you’re going to cope with it. This includes doing your homework and visiting different doctors to find one that you are comfortable and satisfied with. It also means making lifestyle and dietary changes. Ask people in your support group what works for them and what causes more pain. Begin, as quickly as possible, to implement what changes you can or be supportive of those with RSD by encouraging their new lifestyle changes.
5. If you want to take it that next step further, consider organizing your support group for a charity event to support your local group and raise awareness.
These are the places you should start. Hopefully your involvement will provide more support from the community at large.
Author Bio: Carolyn writes about medical education when she’s not helping people find information about registered nursing schools.